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The Patient Perspective

This section covers the stories of people with Parkinson’s Disease. It was initially started with patient profiles written by Jon Palfreman, PhD, but since 2023 it has been revised to include PwP’s personal entries, covering their perspectives and insights. If you have suggestions for a new post in The Patient Perspective, please tell us and write to: jpd@iospress.com.

The Importance of the World Parkinson Congress for People with Parkinson’s

Posted by Pim van Holst, on 29 August 2023

Attending the World Parkinson Congress for the first time was an awe-inspiring and transformative experience, bringing together a global community of people with Parkinson's disease, sparking empowerment and advocacy among attendees.

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Profile: Sara Riggare

Posted by Jon Palfreman, PhD on 20 March 2014

In October 1984, a thirteen-year-old girl called Sara sat in a small village hall in northern Sweden enjoying a folk music concert. “Everyone was clapping their hands and stomping their feet,” Sara recalls, “and I wanted to do the same. I could clap my hands, but when I tried stomping my feet, I discovered I couldn’t. It was as if the signals couldn't go from my brain to my feet.” This is Sara’s earliest memory indicating that something was wrong.

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Profile: Tom Isaacs

Posted by Jon Palfreman, PhD on 28 October 2013

In 1996, a 27-year-old London-based surveyor called Tom Isaacs was diagnosed with Parkinson's disease. Like others before him, he struggled to come to terms with his new identity. As he put it, “The truth was that I was now trapped inside a body that was now ageing at an alarming rate and was often incapable of responding to the demands put on it.”

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