Blog

Jon Palfreman has joined the JPD editorial board as Social Media Editor. He will be responsible for selecting and posting news of interest to the PD research community on the JPD Facebook page, and will be sharing short opinion and review blog posts, which will also be collected here.

 

Jon Palfreman’s Blog

Toward Personalized Medicine for Those with Parkinson’s

Neurologists often remark that Parkinson’s is a highly variable disease. Persons with Parkinson’s not only acquire the disease at different ages, they also manifest different clinical profiles, displaying symptoms that can progress at strikingly different rates. Read more.

Guest Blog

Call to action: Sharing of patient-level data for Parkinson’s research and care

Sue Dubman has more than 20 years of experience in health care and research informatics for academia, industry and the government (NIH). Currently the Senior Director, Informatics Innovation, at University of California San Francisco Cancer Center, Sue is part of a multi-disciplinary team to innovate changes in clinical care and research. Diagnosed with Parkinson's disease (PD) in 2009, Sue has become an active advocate for improving the lives of those living with PD. Sue will have a poster at WPC 2016 (Exhibit Hall B, Level 1, Poster Board Number: P40.09).

Neuroscientist's Corner

Interview: Caroline Tanner

Caroline (Carlie) Tanner had always planned to specialize in family medicine. But while a medical student in Chicago, she fell under the spell of neurologist Harold Klawans. Klawans – one of the first neurologist to use levodopa therapy with PD patients – convinced the young doctor that Parkinson’s was an exciting area of research and practice. Says Tanner, “The idea of being able to intervene with a transformative therapy like levodopa was very attractive, so after some soul-searching, I switched my concentration from family medicine to neurology.”

The Patient Perspective

Profile: Sara Riggare

In October 1984, a thirteen-year-old girl called Sara sat in a small village hall in northern Sweden enjoying a folk music concert. “Everyone was clapping their hands and stomping their feet,” Sara recalls, “and I wanted to do the same. I could clap my hands, but when I tried stomping my feet, I discovered I couldn’t. It was as if the signals couldn't go from my brain to my feet.” This is Sara’s earliest memory indicating that something was wrong.